Past Meetings

September 10th - Presentation on what's new with DBS and questions and answers

Our monthly guest speaker, Dr Atilio Palma, gave us an excellent presentation on DBS. The entire meeting was recorded and will be available on our YouTube Channel in the near future.

Here's links to the videos/websites that we watched and or discussed:

The Growing Toll of America's Booming Kratom Industry
https://youtu.be/yPrUWrO8yJs?si=9tnMno0OlJcyL34D

BLINK - Official Trailer by National Geographic Documentary Films
https://youtu.be/z6Vw1raPngY?si=sKxt9PEqOfwtcxf6

DBS and Me
https://www.dbsandme.com/en.html

Boston Scientific’s Deep Brain Stimulation System
https://www.bostonscientific.com/en-US/medical-specialties/neurological-surgery/deep-brain-stimulation-system.html

September 3rd Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Lifestyle Modification as a Therapeutic Strategy in Parkinson's Disease
https://youtu.be/_x_OWG-myg0?si=Ilfs8iePtrxhMRB2

The MIND Diet: A Detailed Guide for Beginners
https://www.healthline.com/nutrition/mind-diet

Parkinson's Foundation - Hospital Safety Guide
https://www.parkinson.org/resources-support/hospital-safety-guide

Tips to Fight Loneliness and Social Isolation in Parkinson’s Disease
https://www.parkinson.org/blog/awareness/loneliness-social-isolation

Earthing (2nd Edition): The Most Important Health Discovery Ever!
https://a.co/d/9WXspyw

Stop paying too much for prescriptions
https://www.goodrx.com/

August 27th - Interview with Dave Iverson

Here's links to the videos/websites that we watched and or discussed:

Winter Stars: An elderly mother, an aging son, and life's final journey
https://a.co/d/1amQNeW

A Parkinson's and Caregiving Story from Dave Iverson - UF 2024 Parkinson's Educational Symposium
https://youtu.be/61Tz4_Bb69Q?si=CESkChVTiUawxRoN

Introducing the new Every Victory Counts® Manual for Care Partners
https://davisphinneyfoundation.org/introducing-the-new-every-victory-counts-manual-for-care-partners/

Link to YouTube Channel video interview: https://youtu.be/dmlh4OvmoQw?si=K0nrLYTwHEHpQ5lD

August 13th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

The "Need to Grow" Documentary
https://affiliates.foodrevolution.org/theneedtogrow/

Eating for Tomorrow
https://meals.eatingfortomorrow.com/

Your Daily Dose: Managing Parkinson's Prescriptions (MJFF Webinar)
https://www.michaeljfox.org/webinar/your-daily-dose-managing-parkinsons-prescriptions?em_cid=mc-a1bVL000001uKuj

Find your Dopamine Curbs - Learn the Width of Your Road (Dr Laurie Mischley)
https://youtu.be/vg-0kx_B4Kw?si=RDy6cIhMWIBE5Hmt

Neuro-Ophthalmology - Dr Jody G. Abrams
https://www.sarasotaretinainstitute.com/jody-g-abrams-m-d-neuro-ophthalmologist-oculoplastic-surgeon-sarasota-florida/

August 6th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

How To Make Math Entertaining For Everyone. Don McMillan
https://youtu.be/5cF1LYlg5l4?si=wuGqKY5i7xJcKQRJ

Conquering Parkinson's
https://youtu.be/XRxsmqhsYbI?si=0RjlGqK5BMlM0bV0

"Why I am optimistic that we might now have a Silver Bullet for PD" by Dr Jonathan Sackner-Bernstein
https://youtu.be/Uap1kzI5Lp8?si=lQhj_Fx7wAHO94wd

Neuro Challenge Program Calendar
https://www.neurochallenge.org/program-calendar/

Rich Cada's Act for Parkinson's website
https://act4parkinsons.com/

Dehydration in Parkinson’s: Symptoms, Risks & Tips
https://www.neurologysolutions.com/dehydration-in-parkinsons-risks-tips-2/

Liquid Hydration by Liquid I.V. (available at Costco)
https://www.liquid-iv.com/

NoSalt Original Sodium-Free Salt Alternative
https://a.co/d/dYSLrPF

Neuro-Ophthalmology - Dr Jody G. Abrams
https://www.sarasotaretinainstitute.com/jody-g-abrams-m-d-neuro-ophthalmologist-oculoplastic-surgeon-sarasota-florida/

SPEAK OUT!® Therapy Program
https://parkinsonvoiceproject.org/program/speak-out/

Unlocking Parkinson's | 60 Minutes Archive (from 2002)
https://www.cbsnews.com/video/unlocking-parkinsons-60-minutes-archive/

July 30th - Presentation and open Q&A with Dr Michael G. Kaplitt, M.D., Ph.D.

Here's links to the videos/websites that we watched and or discussed:

ClinicalTrials.gov is a place to learn about clinical studies from around the world
https://clinicaltrials.gov/

Lifeforce Nutraceuticals
https://store.tonyrobbins.com/collections/lifeforce-nutraceuticals

Brian Grant Foundation
https://briangrant.org/

Max Strom - Breathe to Heal
https://maxstrom.com/

Link to YouTube channel video: https://youtu.be/JdiZ__qY3ME?si=lZNaMTD9bFNJzsmK

July 16th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

HealthUnlocked - The world's largest social network for health
https://healthunlocked.com/

No Silver Bullet for PD
https://nosilverbullet4pd.com/

Somebody Feed Phil: Season 7 | First Look | Netflix
https://youtu.be/-tN98SGKM3I?si=d6UB_i89WLuvpc1m

Myoclonus - Symptoms and Causes
https://www.mayoclinic.org/diseases-conditions/myoclonus/symptoms-causes/syc-20350459

TLC World Travel
https://www.tlcworldtravel.com/

OCuSOFT Lid Scrub Original Foaming Eyelid Cleanser
https://a.co/d/8R7vsiw

Blink GelTears Eye Drops for Dry Eyes
https://a.co/d/hjlNjo4

PD GENEration: Mapping the Future of Parkinson's Disease
https://www.parkinson.org/advancing-research/our-research/pdgeneration

LSVT Global - Changing Lives with Proven Therapies
https://www.lsvtglobal.com/

July 9th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Easy Movement in Bed - Sheets for Parkinson's Comfort (thanks Marie!)
https://youtu.be/vbBNgMRcPaw?si=PGlw6h-9K5Aufpny

Virtual: The Positive PD Workout with Alix Redmonde presented by Neuro Challenge
https://us02web.zoom.us/meeting/register/tZckdu6prz0qGtdSh_JsCJ1OdtxBYLom6mH1#/registration

AMANTADINE HYDROCHLORIDE
https://davisphinneyfoundation.org/medication-guide/amantadine-hydrochloride/

Earthing (2nd Edition): The Most Important Health Discovery Ever!
https://a.co/d/03wlhtPx

July 2nd Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Coldplay - Fix You (Glastonbury 2024 with MJF)
https://youtu.be/kM-94LhhQTs?si=YQlSV4bLHV-_o_UF

Tips and Tools for Home Safety with Parkinson’s
https://youtu.be/jrxQ-n38-yw?si=WwROfuPh15TVOFPL

Aging in Place with Parkinson's with Carol Chiang
https://youtu.be/P-8SSPeuBBA?si=Jvhbmwx2u3Y_jx68

5 Pelvic Floor Exercises for Anyone and Everyone
https://www.healthline.com/health/fitness-exercise/pelvic-floor-exercises

Cleveland Clinic - Kegel Exercises
https://my.clevelandclinic.org/health/articles/14611-kegel-exercises

June 25th - Presentation and Q&A with Jud Eson

Here's links to the videos/websites that we watched and or discussed:

Michael Davis (juggler)
https://youtu.be/XKRrfAzdpW8?si=C5XmpYRLdqKwVSwx

Anthony Gatto - What is Juggling?
https://youtu.be/CXaDd0EBzg8?si=_DL9F26pV18Zrvu2

Michael Moschen Triangle
https://youtu.be/qjHoedoSUXY

PD SELF Pecha Kutcha - Jud Eason
https://youtu.be/4y5iIrJ8c44?si=CLQgcEmb_R4lZlEN

Unique Artwork by Jud Eason
https://youtu.be/5dOEnguYN1c?si=03OZnUlniida86kh

What Parkinson's Reveals About the Artistic Spark
https://www.americanscientist.org/article/what-parkinsons-reveals-about-the-artistic-spark

Discover PechaKucha presentations, stories, ideas, examples, and videos that will inspire
https://www.pechakucha.com/

DEEP DIVES Virtual Series for Parkinson's Disease (DPF)
https://forms.office.com/pages/responsepage.aspx?id=lYZBnaxxMUy1ssGWyOw8ii8RYek8k3VJu71QyztYvFRUMUJZMTBEUzNLTTNXTEdHWFVaTFhXR0dKQS4u

Specialized Phototherapy in Parkinson's Disease
https://www.urmc.rochester.edu/research/health-research/clinical-trials/clinical-trials-details.aspx?trial=17137&search=

YouTube recording link: https://youtu.be/qLXI1P48C8A

June 18th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

The Money Pit Movie Clip
https://youtu.be/9CJ9EDtZ2p8?si=Q5k9R4Cms2M-onik

Ask the MD: Six Tips for Your First Year with PD
https://youtu.be/xiusPtXayAk?si=qyvwNVnTbSv_Bcac

You Want to Volunteer for Parkinson's Research: Now What?
https://www.michaeljfox.org/webinar/you-want-volunteer-parkinsons-research-now-what

The Every Victory Counts® Manual
https://davisphinneyfoundation.org/every-victory-counts-manual/

Up Ending Parkinson's
https://www.upendingparkinsons.org/

Rock Steady Boxing
https://www.rocksteadyboxing.org/

Power for Parkinsons - YouTube Channel
https://www.youtube.com/@PowerforParkinsons

LSVT BIG and LOUD
https://www.lsvtglobal.com/

Skin Biopsy Update: The latest news
https://www.apdaparkinson.org/article/skin-biopsy-update-the-latest-news-re-efficacy-and-usefulness-in-parkinsons-disease-diagnosis-now-and-in-the-future/

PD GENEration: Mapping the Future of Parkinson's Disease
https://www.parkinson.org/advancing-research/our-research/pdgeneration

Final Risk Evaluation for Trichloroethylene
https://www.epa.gov/assessing-and-managing-chemicals-under-tsca/final-risk-evaluation-trichloroethylene

Parkinson’s Disease vs. Parkinsonism
https://www.parkinson.org/sites/default/files/documents/parkinsons-vs-parkinsonisms.pdf

June 11th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

“What Is Going On?” - Sebastian Maniscalco: Comedy Central Presents - Full Special
https://youtu.be/sGEAqq16gYU?si=NATIbwxs5drlPYMB

Clinical trial testing the SYMBYX light therapy helmet for Parkinson's
https://youtu.be/SIaJr7PLtxY?si=Y5jPW_Xv1DOPM-ry

‘The Whole Body Reset’
https://www.aarp.org/entertainment/books/bookstore/health-food-cooking/info-2021/the-whole-body-reset.html

Progressive Supranuclear Palsy
https://www.hopkinsmedicine.org/health/conditions-and-diseases/progressive-supranuclear-palsy

curePSP Online Support Groups
https://www.psp.org/ineedsupport/online-support-groups

For Love & Life: No Ordinary Campaign
https://www.rogerebert.com/reviews/for-love-and-life-no-ordinary-campaign-documentary-film-review-2024

DEEP BRAIN STIMULATION (DBS) RESOURCES
https://davisphinneyfoundation.org/deep-brain-stimulation-dbs-resources/

June 4th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

“What Is Going On?” - Sebastian Maniscalco: Comedy Central Presents - Full Special
https://youtu.be/sGEAqq16gYU?si=NATIbwxs5drlPYMB

Clinical trial testing the SYMBYX light therapy helmet for Parkinson's
https://youtu.be/SIaJr7PLtxY?si=Y5jPW_Xv1DOPM-ry

‘The Whole Body Reset’
https://www.aarp.org/entertainment/books/bookstore/health-food-cooking/info-2021/the-whole-body-reset.html

Progressive Supranuclear Palsy
https://www.hopkinsmedicine.org/health/conditions-and-diseases/progressive-supranuclear-palsy

curePSP Online Support Groups
https://www.psp.org/ineedsupport/online-support-groups

For Love & Life: No Ordinary Campaign
https://www.rogerebert.com/reviews/for-love-and-life-no-ordinary-campaign-documentary-film-review-2024

DEEP BRAIN STIMULATION (DBS) RESOURCES
https://davisphinneyfoundation.org/deep-brain-stimulation-dbs-resources/

May 28th - Presentation and Q&A with Judith Sachs

Here's links to the videos/websites that we watched and or discussed:

Judith Sachs Email Address
anyonecanmove@gmail.com

Close Contact for Couples® program
https://anyonecanmove.com/close-contact-for-couples

Judith Sach's - Anyone Can Move - YouTube Channel
https://www.youtube.com/@dith904/videos

The Feelings (Emotions) Therapy Wheel
https://a.co/d/jc9PPVx

Transfer and Walking Gait Belt
https://a.co/d/eqdupcm

Watch the recorded meeting on YouTube here: https://youtu.be/I0aPBkBYKq0?si=e5LrgPR61z3cTpfg

May 21st Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

The Pink Panther Strikes Again Dentist Scene
https://youtu.be/lpJQwb3COo8?si=0tSWeGXdnsCeacFp

South Korean researchers develop drug for Parkinson's disease
https://youtu.be/iZM3NRjqaLw?si=YVI0YdwWMACAkBya

A look at the benefits of rock climbing for people with Parkinson’s
https://youtu.be/x3xY46fmRUY?si=qbtJDWxGYCmpG9wy

Up Ending Parkinsons
https://www.upendingparkinsons.org/

John O'Leary - Live Inspired!
https://johnolearyinspires.com/

John O'Leary - Live Inspired Podcast
https://johnolearyinspires.com/podcast/

LSVT LOUD®: Speech Therapy for Parkinson’s Disease and Similar Conditions
https://www.lsvtglobal.com/LSVTLoud

LSVT BIG®: Physical and Occupational Therapy for Parkinson’s Disease and Other Populations
https://www.lsvtglobal.com/LSVTBig

Synapticure offers expert virtual neurology and behavioral health care in all 50 states
https://www.synapticure.com/

May 14th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Failing Out Of Kindergarten. Dennis Regan - Full Special
https://youtu.be/6YkNEIiy2W8?si=XoFuk3W9OWClZiWh

Clinical trials eye repurposed drugs to help Parkinson's patients
https://youtu.be/FNw4SGAylrY?si=hVlLn3zKvrVgobUl

Newly approved Parkinson’s medication helps mum regain mobility
https://youtu.be/NdXQQ10HUb0?si=kMObt9EAEQVe0-5Z

AbbVie Launches PRODUODOPA®
https://news.abbvie.com/2024-01-09-AbbVie-Launches-PRODUODOPA-R-foslevodopa-foscarbidopa-for-People-Living-with-Advanced-Parkinsons-Disease-in-the-European-Union

FDA swats away Supernus' Parkinson's disease infusion pump for 3rd time
https://www.fiercepharma.com/pharma/fda-swats-away-supernus-parkinsons-disease-infusion-pump-third-time

PARKINSON’S DISEASE AND CAR ACCIDENTS
https://www.leiferlaw.com/parkinsons-disease-car-accidents/

Driving When You Have Parkinson’s Disease
https://www.nhtsa.gov/sites/nhtsa.gov/files/10900f-drivewell-handout-parkinsons.pdf

Driving Safely While Aging Gracefully
https://www.nhtsa.gov/older-drivers/driving-safely-while-aging-gracefully

Refreshing your driving skills
https://www.aarpdriversafety.org/

Connect2Tools to Overcome Social Isolation
https://connect2affect.org/

May 7th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Dragnet Clapper Caper with Jack Webb & Johnny Carson
https://youtu.be/jgYbogp1Ha0?si=Snzr4I03hpbnx8AU

Loneliness in Parkinson's Severity
https://youtu.be/5s6KVPfXw4E?si=TppJ-Y4CTu0GgjAK

Illuminating the Night - Night Symptoms of Parkinson's
https://youtu.be/7IKa304elFA?si=hDWQY-xtLtbVqZ3S

SLEEP Survey: Surveying Late Evening Effects of Parkinson’s
https://www.surveymonkey.com/r/PDAvengersSleepSurvey

2024 World Parkinson Day - Spark the Night Cities
https://www.pdavengers.com/spark-the-night-album

Stronger Memory Program
https://goodwinliving.org/stronger-memory/

Parkinson Voice Project
https://parkinsonvoiceproject.org/

Parkinson Voice Project - YouTube Channel
https://www.youtube.com/@ParkinsonVoiceProject

Off-Key Chorale
https://keychorale.org/community/off-key-chorale/

Free Parkinson's Care Kit
https://www.parkinson.org/resources-support/pd-library/order-publications

Neuro Challenge Foundation
https://www.neurochallenge.org/

Parkinson Place Center
https://parkinsonplace.org/

Breeze Transit in Sarasota County
https://www.scgov.net/government/breeze-transit

GoGo Grandparent Transportation Services
https://www.gogograndparent.com/

Netflix Hack Your Health: The Secrets of Your Gut
https://www.netflix.com/title/81436688

April 30th - Interview with Dr Heather Herrema

Here's links to the videos/websites that we watched and or discussed:

LSVT BIG®: Physical and Occupational Therapy for PD
https://www.lsvtglobal.com/LSVTBIG

Interval Walking Training
https://youtu.be/z71aHZ4scMs?si=wUzGqYNRvT-B0wBz

Power for Parkinsons
https://www.powerforparkinsons.org/

Parkinson Wellness Recovery
https://www.pwr4life.org/

Dance for PD
https://danceforparkinsons.org/

Pickleball for Parkinsons
https://usapickleball.org/news/for-those-with-parkinsons-pickleball-can-be-an-ideal-sport/

Rock Steady Boxing
https://www.rocksteadyboxing.org/

Neuro Challenge Foundation Programs and Services
https://www.neurochallenge.org/parkinsons-disease-sarasota-education-programs/

Urban Poling
https://urbanpoling.com/

The video of Dr Heather Herrema can be found here: https://youtu.be/7XGmy_nF08I?si=o-C0WFmoFw2DbXBl

April 23rd Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Jeff Allen's Top 5 Dry Bar Comedy Clips
https://youtu.be/l_4QL7g6jhI?si=x9UcIrLmNMmC3xFL

Rice and Beans - How to Dose your Dopamine
https://youtu.be/WUx7lKAemHk?si=SHoGgbLPmu6XGBtR

Find your Dopamine Curbs - Learn the Width of Your Road
https://youtu.be/vg-0kx_B4Kw?si=nXCGpXxGj9gJVMoG

Synapticure
https://www.synapticure.com/for-patients-and-families/home

HOW TO BUILD YOUR PARKINSON’S CARE PARTNER CARE TEAM
https://davisphinneyfoundation.org/how-to-build-your-care-partner-care-team/

Ask the MD: Myths about Levodopa
https://youtu.be/QyBGAuhBYzA?si=VutFyvdc2i9uJkcn

April 16th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Jeff Allen's Top 5 Dry Bar Comedy Clips
https://youtu.be/l_4QL7g6jhI?si=x9UcIrLmNMmC3xFL

What is Parkinson's Disease Dementia?
https://youtu.be/_GbzImSwgxc?si=5wAsob-LHFwQfZe4

Udio: The Insanely Good FREE AI Music Maker!
https://youtu.be/5ZBM-JzQzdY?si=2lxWycDaTVA8HHrw

Neuropsychological Assessment
https://www.ncbi.nlm.nih.gov/books/NBK513310/

Light Therapy for PD Clinical Trial
https://www.lightforpd.com/

The Every Victory Counts Manual
https://davisphinneyfoundation.org/every-victory-counts-manual/

RYTARY
https://www.rxlist.com/rytary-drug.htm

MyRYTARY Patient Support Program
https://rytary.com/patient-support

The PAN Foundation
https://www.panfoundation.org/

GoodRx
https://www.goodrx.com/

April 9th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

The Difference Between A Dork And A Nerd - Don McMillan
https://youtu.be/kwz-Md6OoyA?si=l9bWeFvhREvr4Wa4

The Sparx3 Trial: Investigating Exercise and Neuroprotection
https://youtu.be/VIkRaKr3g78?si=PQjv_NMyjNKHzoGY

SPARX3 Phase 3 Clinical Trial
https://www.sparx3pd.com/

Bastiaan R. Bloem, MD, PhD, FRCPE
https://www.michaeljfox.org/researcher/bastiaan-r-bloem-md-phd-frcpe

OCuSOFT Eyecare Products
https://www.ocusoft.com/

BARD player sign up
https://www.loc.gov/nls/find-your-library/

World Parkinson Night!
https://www.worldparkinsonsnight.com/

April 2nd Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

Little Big Shots Top Moments | Top 10 | Steve Harvey funny moments | Extraordinary Kids
https://youtu.be/undMyposp1w?si=JMGdqBc_ZRngyAwC

Ask the MD: Five Ways to Invite Your Best Sleep with Parkinson's
https://youtu.be/Mm7D5UX5Xfg?si=K5IYvcX6cwy_aEz-

World Parkinson Night!
https://www.worldparkinsonsnight.com/

Magnesium, muscles and Parkinson’s
https://parkinsonseurope.org/2018/09/26/magnesium-muscles-parkinsons/

Magnesium in Parkinson’s disease: an update in clinical and basic aspects
https://www.ncbi.nlm.nih.gov/books/NBK507269/

March 19th - Presentation by Jill Grinnell from Golden Girls Solutions

Starting the process of finding a safe and individually fitting senior living community based on care needs, finances, environment, location, and preferences can feel overwhelming - don’t do it alone! Jill Grinnell has over 30 years of experience working with seniors and their families. She started her career after graduating from Mt. Mary University with a degree in Business Communications and Marketing with an emphasis in Gerontology. Jill’s first job in the Senior Care industry was as a Marketing and Activities Director at residential care homes. From there she fell in love with the concept of having care, compassion, socialization and security under one roof for seniors that otherwise would be alone or in long-term care. From there she explored other opportunities and had a variety of roles through the years as Executive Director, Memory Care Director, Life Enrichment Specialist, and Regional Director of Sales and Marketing. What has always mattered most to her has been her connection with seniors and their families while making a difference in their lives. As a Certified Dementia Practitioner, her most recent venture was opening a Montessori-based Adult Day Center that grouped individuals based on their cognitive abilities and provided a secure environment throughout the day along with meaningful programming. Jill also is a support group facilitator for the Alzheimer’s Association, Mild Cognitive Impairment Groups, and Caregiver Support Groups. She is a current student of Leadership Sarasota Class of 2024. She is the proud mother of two boys, Zach (26) and Riley (19), and when she is not working, she is cheering on her son Riley at Special Olympics games or Challenger baseball.

Here's links to the videos/websites that we watched and or discussed:

Golden Girls Solutions - Expert Senior Living & Care Solutions
https://www.goldengirlssolutions.com/

Here's a link to view the recorded meeting on YouTube
https://youtu.be/4HaWGeW5oLg

March 12th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed

Failing Out Of Kindergarten - Dennis Regan
https://youtu.be/6YkNEIiy2W8?si=4DvBm0LOYx81neGh

The #1 Key to Combating Parkinson's Apathy and Low-Motivation (with Dr. Sarah King, PT, DPT)
https://youtu.be/dIKOA0m_L9c?si=fahEKETItnWBJmpl

Apathy and PD
https://www.parkinson.org/library/fact-sheets/apathy

22nd UF Health Annual Parkinson’s Symposium
https://fixel.ufhealth.org/2024/02/12/22nd-annual-parkinsons-symposium/

Synapticure
https://www.synapticure.com/

PhotoPharmics - Much More than a Movement Disorder (red light therapy trial)
https://photopharmics.com/patient-experience/

At-home laser light and photobiomodulation (PBM) therapy for the improvement of chronic conditions
https://symbyxbiome.com/

"Light therapy for Parkinson's":- Dr Wayne Markman CEO SYMBYX
https://youtu.be/E9XSIzblucc?si=-GbEYlxnauQUQPtJ

Patrick and the Whale | Full Episode
https://youtu.be/9zMIcOiwvxk?si=TISQyMT_FdSdo--4

March 5th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed:

TOTAL IDIOTS AT WORK 2023
https://youtu.be/xmB3g0p6aMY?si=uiVxRi4itnatr5Rq

What the Parkinson's Disease Biomarker Breakthrough Means in Practice
https://youtu.be/IiyWgGE2SGk?si=uC7kikVrxgw5lp9a

The Vibrating Glove For Parkinson’s: Hope, Hype Or Both?
https://www.parkinsonsecrets.com/blog/the-vibrating-glove-for-parkinsons-hope-hype-or-both

Can shaking hands fix shaking hands?
https://scienceofparkinsons.com/2022/12/05/hand/

Parkinson’s vibration gloves: 6 month double update-homemade
https://youtu.be/-9w1vbxou7E?si=_T00EsbgQcNpu1tW

A Supersmeller Can Detect the Scent of Parkinson’s, Leading to an Experimental Test for the Illness
https://www.scientificamerican.com/article/a-supersmeller-can-detect-the-scent-of-parkinsons-leading-to-an-experimental-test-for-the-illness/

How To Stay Safe During a Hospitalization with Parkinson’s
https://www.parkinson.org/blog/tips/hospitalization

At-home laser light and photobiomodulation (PBM) therapy for the improvement of chronic conditions
https://symbyxbiome.com/

"Light therapy for Parkinson's":- Dr Wayne Markman CEO SYMBYX
https://youtu.be/E9XSIzblucc?si=-GbEYlxnauQUQPtJ

An Adverse Drug Interaction of Haloperidol with Levodopa
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4418258/

Restless legs syndrome
https://www.mayoclinic.org/diseases-conditions/restless-legs-syndrome/symptoms-causes/syc-20377168

Natrol Advanced Sleep Melatonin 10mg
https://a.co/d/8iLl9aD

Posture Corrector for Women & Men
https://a.co/d/hUWAmuo

Viraball Physiotherapy Vibration Therapy Ball
https://a.co/d/i3JAT51

Prince Of Peace Tea Premium Pu-erh Tea
https://a.co/d/4aPmgQU

February 27th Interview and Q & A with Dr Peter Tass

Dr. Peter Tass investigates and develops neuromodulation techniques for understanding and treating neurologic conditions such as Parkinson’s disease, epilepsy, dysfunction following stroke and tinnitus. He creates invasive and non-invasive therapeutic procedures by means of comprehensive computational neuroscience studies and advanced data analysis techniques. The computational neuroscience studies guide experiments that use clinical electrophysiology measures, such as high density EEG recordings and MRI imaging, and various outcome measures. He has pioneered a neuromodulation approach based on thorough computational modelling that employs dynamic self-organization, plasticity and other neuromodulation principles to produce sustained effects after stimulation. To investigate stimulation effects and disease-related brain activity, he focuses on the development of stimulation methods that cause a sustained neural desynchronization by an unlearning of abnormal synaptic interactions. He also performs and contributes to pre-clinical and clinical research in related areas.

Here's links to the videos/websites that we watched and or discussed
Register to possibly participate in Dr Tass's Clinical Trials (send an email to this email address)
parkinsonsvcr@stanford.edu

Register for the Neuro Challenge Parkinson's Expo on March 2nd in person or virtually
https://parkinsonsexpo.org/

Training Wheels Off YouTube Channel
https://www.youtube.com/@TrainingWheelsOffParkins-is6dv

February 20th Weekly Support Group Meetng

Here's links to the videos/websites that we watched and or discussed

Taking Your Wife Bungee Jumping - Phil Palisoul
https://youtu.be/4utTsLSmey8?si=ma-XWnLtxRZQ3J5-

Researchers Use Music to Reduce Shuffling Gait in Parkinson’s Patients
https://youtu.be/9hRLSW0BH0g?si=DOGySu0Loa27Whdn

Michael J. Fox on latest Parkinson's research and how he's managing the disease
https://youtu.be/2nwxlcHytx4?si=ayAOZXSoWGPbzwYu

Healthgrades - Find the care you need
https://www.healthgrades.com/

Processing Diagnosis: Photography as a Lifeline
https://events.blackthorn.io/2EmH006/4a22UU6WtF

Dance for PD
https://danceforparkinsons.org/take-a-class/zoom-classes/

Music and Dance Help Adults Overcome Movement Disorders
https://www.aarp.org/health/brain-health/info-2020/music-dance-parkinsons.html

We Are The Champions! - John O'Leary
https://johnolearyinspires.com/2024/02/champions/

National Library Service for the Blind and Print Disabled Downloadable Books and Magazines
https://nlsbard.loc.gov/nlsbardprod/login/NLS

How to Know a Person: The Art of Seeing Others Deeply and Being Deeply Seen by David Brooks
https://a.co/d/5QtoAN3

February 13th Weekly Support Group Meetng

Here's links to the videos/websites that we watched and or discussed

Is 2024 our last year EVER?! | Zoltan Kaszas
https://youtu.be/eWgg6CZ8N2w?si=YrijSFutol2CBRWI

PD research takeaways from 2023 & research to be looking for in 2024 - presented by Dr. Simon Stott
https://youtu.be/S5peb0H7Y9w?si=jtHctrW72LDgqY6r

Paraquat Gets EPA Thumbs Up
https://www.pdavengers.com/blog/paraquat-gets-epa-thumbs-up

POLES AND PARKINSON’S: HOW POLE WALKING CAN HELP YOU LIVE WELL (AND STRONGER) WITH PARKINSON’S
https://davisphinneyfoundation.org/poles-and-parkinsons-how-pole-walking-can-help-you-live-well-and-stronger-with-parkinsons/

PEDALING FOR PARKINSON’S
https://davisphinneyfoundation.org/programs/pedaling-for-parkinsons/

Speech Accessibility Project
https://speechaccessibilityproject.beckman.illinois.edu/

National Library Service for the Blind and Print Disabled Downloadable Books and Magazines
https://nlsbard.loc.gov/nlsbardprod/login/NLS

How to Know a Person: The Art of Seeing Others Deeply and Being Deeply Seen by David Brooks
https://a.co/d/5QtoAN3

February 6th Weekly Support Group Meetng

Here's links to the videos/websites that we watched and or discussed

Things Are Just Different In The South - Brent Blakeney
https://youtu.be/frHmxUNaXvk?si=znIL0u0CgSeRq2MK

Breakthrough Research in Parkinson's Disease
https://youtu.be/U7jNAegh8BY?si=qVPYHtpG8hSJ2Y0b

Bridging the Dopamine Gap with Nourianz | PD Medications, Purposes, and Mechanisms
https://youtu.be/iTymrfzAWfM?si=SoPGb5ff8Uq3knyI

The 2024 Neuro Challenge PD Expo on March 2, 2024
https://parkinsonsexpo.org/

An Adverse Drug Interaction of Haloperidol with Levodopa
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4418258/

The PAN Foundation
https://www.panfoundation.org/

Synapticure: Virtual Care For Parkinson's, Alzheimer's and ALS
https://www.synapticure.com/

NOURIANZ® (istradefylline) - Official HCP Site
https://www.nourianzhcp.com/

RYTARY® (carbidopa and levodopa) extended-release
https://rytary.com/

MyRYTARY Patient Support Program
https://rytary.com/what-support-available#:~:text=Call%201%2D844%2D467%2D,many%20financial%20assistance%20options%20available

January 30th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed

Funny Baby Videos - All Of The Cutest Things You'll See Today
https://youtu.be/_NTfTd4HCRo?si=x7A2RQz2d4evudIJ

Dr. Gilbert Hosts: Medicinal Plants and Supplements in Parkinson's Disease
https://www.youtube.com/live/tPvCsuay_0A?si=yBBqlZ_PAH9Xzy7j

The 2024 Neuro Challenge PD Expo on March 2, 2024
https://parkinsonsexpo.org/

The PAN Foundation
https://www.panfoundation.org/

Uses of Botulinum toxin in Parkinson’s disease
https://www.apdaparkinson.org/article/botox-treatment/

Donepezil for cognitive impairment in Parkinson's disease: a randomised controlled study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1737925/#:~:text=Conclusions%3A%20Donepezil%20improves%20cognition%2C%20and,in%20patients%20with%20cognitive%20impairment.

January 23rd - Interview with Danielle Frain PT

We had a great meeting this week with our monthly guest, Danielle Frain, PT. She explained to us the importance of seeing a PT, OT and ST with our diagnosis of PD.

Here's links to the videos/websites that we watched and or discussed

Physical Therapy and Parkinson's Disease
https://www.parkinson.org/sites/default/files/documents/physical-therapy-parkinsons.pdf

Skilled Maintenance Therapy Under Medicare
https://www.apta.org/your-practice/payment/medicare-payment/coverage-issues/skilled-maintenance-therapy-under-medicare

Video interview on YouTube - https://youtu.be/UWKP9OXLoYU?si=MjriwyG54BKaglyY

January 16th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed

The Most One-Liners You'll Ever Hear In A Comedy Show. Brian Kiley
https://youtu.be/aEACJV9n3QI?si=yhosqJxsl9xEAfRt

Spinal implant to treat Parkinson's
https://youtu.be/Ou3LrtLNxWM?si=87KXcKvZg6NR0BQ1

Parkinson's Expo by Neuro Challenge
https://parkinsonsexpo.org/

Synapticure - Virtual Care for PD
https://www.synapticure.com/

Pass to Pass Hiking for PD
https://passtopass.org/

Kizik Shoes - Step into Comfort
https://kizik.com/

January 9th Weekly Support Group Meeting

Here's links to the videos/websites that we watched and or discussed
When You’re Domestically Impaired. Dorie McLemore
https://youtu.be/Mm1ld0HV75c?si=9WD2hg8WDq8Rc1eA

How Acts of Kindness Sparked a Global Movement | Asha Curran
https://youtu.be/YdTKcdyIYkA?si=DVm02nrVSzbyss4V

Annual Parkinson’s Symposium - Neuro Challenge
https://www.neurochallenge.org/events/symposium/

Practical ideas to help with handwriting
https://www.parkinsons.org.uk/information-and-support/your-magazine/tips/practical-ideas-help-handwriting

Life-flo Magnesium Lotion
https://a.co/d/i9EfwRk

How to use Slide to Type on iPhone
https://appleinsider.com/articles/21/03/09/how-to-use-slide-to-type-on-iphone

An Immense World: How Animal Senses Reveal the Hidden Realms Around Us by Ed Yong
https://a.co/d/7Z3X0Zb

The Benefits of Activator Poles for People with Parkinson’s
https://urbanpoling.com/activator-poles-for-parkinsons/